Wednesday, November 26, 2014
By Julie Wiegan
November is National Alzheimer’s Awareness Month and with Thanksgiving kicking off the holiday season, many families will be spending time together with loved ones who have dementia.
“We have an expectation that loved ones should never change from the person we’ve perceived them to be for years, but everyone changes significantly over an extended period, especially those diagnosed with dementia,” says Kerry Mills, coauthor with Jennifer A. Brush of I Care, A Handbook for Care Partners of People with Dementia.
“Dementia encompasses a wide range of brain diseases, which means it’s not the fault of a Grandma if she has trouble remembering things or gets flustered. Empathy for what she’s experiencing on the level of the brain will help your relationship with her. Do not expect her to meet you halfway to your world; you have to enter her world.”
“Currently, there’s a stigma with the condition, but I’d like to change the baseline for how we regard dementia,” Mills says. “As with other medical conditions, Alzheimer’s should not be about waiting to die – patients often live 15 years or more after a diagnosis. It should be about living with it.”
Here are 5 tips on how to interact with family members who are suffering from dementia:
Do not get frustrated
“First, do no harm” – the excellent maxim taught to medical students, is also a great first principle for those interacting with Grandma, who may be experiencing a level of frustration and anxiety you cannot comprehend adequately. She simply doesn’t have access to certain details, but she is still a conscious and feeling person who has plenty to offer. If you get frustrated, she’ll pick up on it.
Dedicate someone to Grandma during the gathering
Of course, loving families will want to include Grandma in the group, but be careful not to overwhelm her with attention. Her brain, which has trouble processing some information, could use assistance – a liaison to help her process things. Grandpa could probably use a break; her son or daughter may be the best handler during a gathering.
Give Grandma purpose; give her a task in the kitchen
Keep Grandma, who may have been prolific in the kitchen in the past, engaged! Simple tasks, such as mashing potatoes or stirring gravy, may be best. Engage her in conversation about the food. If it’s Grandpa whose suffering dementia, include him in a group. Give him a cigar if the other men are going outside to smoke. Engage him in a conversation about football, which may allow him on his own terms to recall details from the past.
Use visual imagery and do not ask yes-or-no questions
Again, asking someone with Alzheimer’s to remember a specific incident 23 years ago can be like asking someone confined to a wheelchair to run a 40-yard dash – it’s physically impossible. Don’t pigeonhole her. Direct Grandma in conversation; say things to her that may stimulate recollection, but don’t push a memory that may not be there. Pictures are often an excellent tool.
Safety is your biggest priority
Whether during a holiday gathering or in general, Grandma may commit herself to activities she shouldn’t be doing, such as driving. “She’s been driving for decades, and then she develops a memory problem, which not only prevents her from remembering her condition, but also how to drive safely,” Mills says. “This major safety concern applies to any potentially dangerous aspect to life.”
To learn more about how to care for loved ones with Alzheimer’s, visit EngagingAlzheimers.com.